Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.
International Journal for Population Data Science(2019)
摘要
This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PIu0026E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PIu0026E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.
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关键词
public involvement,research,data-intensive
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