Patient Reported Outcomes Using Internet-Based Tablets To Inform Hospice Care For Minority And Nonminority Patients With Cancer.

JOURNAL OF CLINICAL ONCOLOGY(2016)

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Abstract
10115 Background: Unrelieved symptoms for cancer patients receiving hospice care could be influenced by lack of systematically collected PRO. Many hospice nurses now use tablets for care process documentation, but tablets are not commonly used to collect PRO. The study aim was to compare pain and symptom distress among minority and NHW hospice patients with cancer who reported their symptoms via an Internet enabled tablet with data transmitted electronically to their hospice nurses. Methods: From two hospices, we screened 2,814 cancer patients, 819 were eligible, 211 consented, and 209 completed baseline measures. In their homes, patients (mean age 68±15; 49% male; 33% African American, 46% NHW, 18% Hispanic, 3% other/unknown) used an Internet-enabled Samsung tablet to complete the valid, reliable PAINReportIt (pain intensity now, least and worst in the past 24 hours [0-10]) and Symptom Distress Scale (SDS, 0-5). Data were written to a secure server, extracted from the database, and analyzed using statistical software R. Results: Ease of tablet use was high; missing data were minimal (2.8%). Mean pain intensity scores for now, least, and worst pain in the past 24 hours were 4.7±2.7, 3.1±2.3, 7.1±2.3, respectively. The average of these pain intensity scores (API) was 5±2 and the average SDS was 2.6±.6. Patient age was negatively correlated with both API (r= -.26, p< .001) and SDS (r= -.20, p= .004). Neither API nor SDS scores differed by the patient’s gender or ethnicity. Compared to NHW, minority patients reported higher API (diff= .73, p= .01), but did not differ significantly in their reported SDS scores (diff= -.04, p= .61). Further examination of API scores showed that, controlling for hospice difference and age, Hispanics reported significantly higher API than NHW (diff= 1.00, p= .01) but the gap between African Americans and NHW was not significant (diff= .61, p= .10). Conclusions: Improvements are needed to promote comfort at the end of life, especially for Hispanics. Tablet-based PRO offers a novel way for hospice cancer patients to add their unfiltered viewpoint to their hospice record. The influence of the PROs on analgesic prescriptions and 1-week pain outcomes are under study. Clinical trial information: NCT02026115.
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Key words
hospice care,tablets,cancer,outcomes,internet-based
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