Characteristics and healthcare situation of adult patients with tuberous sclerosis complex in German epilepsy centers

Hajo M. Hamer,Margarete Pfäfflin,Hartmut Baier,Frank Bösebeck, Melanie Franz,Martin Holtkamp,Gerhard Kurlemann,Theodor W. May,Thomas Mayer, Mirjam Metzner,Bernhard J. Steinhoff,Stefan Stodieck,Hans-Beatus Straub,Yvonne G. Weber,Christian Brandt

Epilepsy & Behavior（2018）

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摘要

•Patients with TSC frequently suffer from uncontrolled focal or multifocal epilepsy.•Every fifth adult patient with TSC manages to live on his own.•Healthcare of adult patients with TSC appears less structured than pediatric care.•Epilepsy surgery may be underused.

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AED,TSC

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