"You're always fighting": the lived experience of people with postural orthostatic tachycardia syndrome (POTS).

Disability and rehabilitation(2022)

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Abstract
Individuals faced considerable physical, psychosocial and financial challenges and felt underserved by healthcare and support provision. Early diagnosis and recognition of symptoms, along with education on self-management may help reduce associated mental health burdens. A biopsychosocial conceptualisation of this condition may help lead to a more integrated approach to care.Implications for rehabilitationLiving with POTS impacts on all aspects of life, including work, family, and social relationships/activities, and has financial burdens.Family doctors need education on the existence of POTS and the importance of providing biopsychosocial support services.More timely diagnosis of POTS is required, with access to specialists who understand the burden of living with POTS.
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Key words
IPA,Leventhal,POTS,misdiagnosis,postural orthostatic tachycardia syndrome,self-management
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