Medical data: the choice to opt out
NATURE(2014)
摘要
You accuse the National Health Service (NHS) in England of using “sleight of hand” in the way we are advertising the care.data programme (see go.nature.com/srp5nu), suggesting that we should make it clearer to people that the programme poses potential risks to their privacy and that they can opt out of it (Nature 505, 261; 2014). We believe that this accusation is unwarranted. “You have a choice” is written in bold on the cover of the leaflet about the programme, which is being sent to every household in the country. The leaflet goes on to say: “If you do not want information that identifies you to be shared outside your GP [general practitioner] practice, please ask the practice to make a note of this in your medical record.” Last month, we published a detailed assessment of the potential negative and positive impacts of the programme on privacy (see go.nature.com/xcqaql). And, most importantly, patients have the opportunity to discuss the changes with a trained adviser and with their GP. It would be unethical to introduce this opt-out system without proper publicity, as well as illegal under the UK Data Protection Act 1998. This accounts for the scale of our awareness-raising strategy and our advice last August to all GP practices to start telling people about the proposed changes. Subscribe to comments
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