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A national internet-linked based database for pediatric interstitial lung diseases: the French network

Orphanet Journal of Rare Diseases(2012)

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摘要
Interstitial lung diseases (ILDs) in children represent a heterogeneous group of rare respiratory disorders that affect the lung parenchyma. After the launch of the French Reference Centre for Rare Lung Diseases (RespiRare®), we created a national network and a web-linked database to collect data on pediatric ILD.
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关键词
Interstitial lung disease,Network,Epidemiology,Database
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