Evolution of a High-Risk Cancer Registry: Past, Present and Future

Background Huntsman Cancer Institute's High-Risk Cancer Clinics at the University of Utah has followed high-risk colon, pancreatic, melanoma and breast cancer patients, under the auspices of independently run and funded registries, for over 15 years. As knowledge of the genetics of high-risk syndromes and cancers has grown, awareness has emerged of the clinical overlap between risks for these conditions, previously viewed as distinct. To address this growing understanding and to assist in the facilitation of broad-based research efforts, we have embarked on a plan to combine these registries into one single global high-risk cancer registry.